Here I go......Hi everyone, it's me, Charlotte. Its been a while since I last blogged for prayers and I can't thank everyone enough for always remembering in us.
Today is the first day that I am alone at home. Roy went back to work today and Christina went back to school on Monday, so here I am home with my mom. We have gotten so many emails and guestbook entries and eventually we will respond but I thought I'd start with a blog to let you know how thankful we are for all of you. You have all shown us increible amounts of support over the last 4 years and especially now. The last 2 days have been a little difficult and I'm sure I'll have a lot of those days. I have so much to do, our living area in my mom's house has been a dumping spot over the last couple of months with Jack being in and out of the hospital, I have med's that need to be thrown out, clothes to put away and toys to be boxed. Everywhere we turn, there is Jack and for the rest of our lives there will always be Jack.
As my very good friend said, "Jack has a legacy" which Roy and I are determined to continue to fulfill. Jack gave us all so much. The NEMO diagnosis and the knowledge alone will help more families with this condition and we will remain advocates and support systems to all of our NEMO families. We are a small group who live miles and miles apart but we have a closeness that makes us family. There is so much to do and we will do it. Since having Jack and going through his incredible journey, I have expressed that I have a calling in life and that calling is to help and give my knowledge and gain more knowledge to be able to support and help others. I know I have to go back to work, which I have wanted to do for a long time as long as Jack was better, and now he is better, no more pain, no more suffering, just peace. I'm actually tossing around schooling or something that can make me more beneficial to the cause. We'll see, right now our main focus is on Christina.
To all of our NEMO families,
Don't be afraid to call us, we are here for you. Any questions you need answered, we are here for you. Jack was cured from NEMO. Jack had a purpose and he endured and did more then any 1 adult may ever do in a lifetime. Jack was the strongest man we have ever known and he will give us the strenth to continue to help all of you, our NEMO families.
Thank you all again so much for everything.
God Bless
Comments (3)
Your strength and courage overwhelm me. I cannot imagine the position you are in right now or the hard things you have to go through. My heart aches for all of you. Know we are here and love you all and miss Jack every day. All our love. The Gutierrez'
Posted by Tracy Gutierrez | April 6, 2007 5:40 AM
Posted on April 6, 2007 05:40
I first heard about Jack on the Discovery Health Channel. That was the first time I had ever heard about the disease of NEMO. I am so sorry for your loss. But I hope that others like myself that have found out about NEMO through Jack's short, but precious life can now help to raise awareness for this terrible condition.
Sweet Jack, rest in peace for you are now cured.
I'm praying for your family, that you may get through this time that I'm sure is so difficult.
Romans 8:28 - "For we know that all things work together for good. For those who love HIM and are called according to HIS purpose.
Posted by Rachael | April 5, 2007 1:33 AM
Posted on April 5, 2007 01:33
A LETTER FROM
HEAVEN
"To my dearest family, some things I'd like to say.
But first of all, to let you know, that I arrived okay.
I'm writing this from heaven. Here I dwell with God above.
Here, there's no more tears of sadness; here is just eternal love.
Please do not be unhappy just because I'm out of sight.
Remember that I'm with you every
morning, noon and night.
That day I had to leave you when my life on earth was through,
God picked me up and hugged me and He said, "I welcome you."
"It's good to have you back again, you were missed while you were gone.
As for your dearest family, they'll be here later on.
I need you here badly, you're part of my plan.
There's so much that we have to do, to help our mortal man."
God gave me a list of things, that he wished for me to do,
and foremost on the list, was to watch and care for you.
And when you lie in bed at night, the day's chores put to flight,
God and I are closest to you... in the middle of the night.
When you think of my life on earth, and all those loving years,
because you are only human, they are bound to bring you tears.
But do not be afraid to cry; it does relieve the pain.
Remember there would be no flowers, unless there was some rain.
I wish that I could tell you all that God has planned.
But if I were to tell you, you wouldn't understand.
But one thing is for certain, though my life on earth is over.
I'm closer to you now, than I ever was before.
There are many rocky roads ahead of you and many hills to climb;
But together we can do it by taking one day at a time.
It was always my philosophy and I'd like it for you too....
That as you give unto the world, the world will give to you.
If you can help somebody who's in sorrow and pain,
then you can say to God at night... "My day was not in vain."
And now I am contented.... that my life has been wothwhile,
Knowing as I passed along the way, I made somebody smile.
So if you meet somebody who is sad and feeling low,
Just lend a hand to pick him up, as on your way you go.
When you're walking down the street, and you've got me on your mind;
I'm walking in you footsteps only half a step behind.
And when it's time for you to go.... from that body to be free,
remember you're not going.... you're coming here to me.
Posted by Tammy & Tyler | April 4, 2007 9:13 PM
Posted on April 4, 2007 21:13