Home
Today Jack was discharged and we are now finally home after exactly 4 weeks in the hospital. There is definitely "no place like home", especially home together as a family.
We got our delivery of TPN and supplies this evening and a home care nurse came to help us get reaquainted with doing all of this. Thank you MaryJane!!!!! And now begins our journey of home TPN and with lots of prayers NO MORE HOSPITAL STAYS!!!!! The original thought was to keep Jack on TPN for 2 months in hopes that the IV nutrition will help give him what he needs to heal his gut, give him the right amount of electrolytes, gut rest and weight gain. We've got one month down so one more to go and a kid that weighs 34 pounds. With the GVHD results from the biopsy and the medication protocol required to treat it, we are hoping that Jack will start to show signs of a healing gut and a working immune system.
As always, thank you for all the much needed prayers.
We are hoping to have a very quiet family weekend.
God Bless
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That is Great News!!!, I will Definatly be Praying and Knocking Harder than Ever!!!
YEAH JACK!!!!
We love you and will see you soon. Keep going my big boy.
Diney, Jesse and Jamie
Welcome home Little man!
Glad your home, Im doing well.Hope to see you at next clinic appointment I only go once a month so far. Still not eating, but feeling good. Keep fighting and fight on. God bless you Charlotte.Still praying Ronnie is still being feed through the tube.
Love Lula & Ronnie
Good Luck!