Cure 4 Jack

Day +70 and +71- Wednesday, July 26, 2006 and Thursday July 27, 2006

I don't know how this happened but, Jack got admitted to his same room again.................very strange..................

We were doing alright with our experiment with the formula, when on Friday night Jack started having some stomach cramping, which was very uncomfortable for him. The weekend went on and seemed to become more frequent. We knew we had an appointment with the new gastroentestinal doctor for tuesday, so we were hoping that either the cramping would go away or the doctor would come up with a reason for it.

Tuesday morning Roy and I left home early to go for the GI appointment which went pretty well. It was decided that the only way we were really going to know what is going on with Jack's gut was for him to go in and take a look through endoscopy and colonoscopy. No one really was worried about his stomach cramping. After that appointment we went up to clinic for our regular transplant appointment and we found out that Jack lost 3 pounds which is really NOT good. So, what is causing all of this? The lack of formula or whatever is causing the cramping. We went home and Jack's gut symptoms didn't seem to get better. We had a rough night with a lot of stooling and cramping and Jack woke up wednesday morning just not feeling like getting out of bed, which is very unusual for him.

I called down to CHOP and spoke with Ginny one of the nurse practioners and we finally decided that we didn't want to leave Jack so uncomfortable and that it would be wise for me to have him admitted and then they could work on having his scopes done during an admittance rather then wait for the GI scheduling department call us with an appointment over the next couple of weeks. So, down I traveled to Philly and Jack got admitted yesterday afternoon. We found out on Tuesday that Matthew Brand was getting admitted for stomach cramping and he was going to get a scope, too. When we got to day hospital where they started some fluids, Matthew and his mom Cathie came down to sit with us and waiting with us til we were admitted into our room. It seems quite coincidental that both these boys have the same symptoms?...............

Jack is in his glory, his girl Tracey was his admitting nurse and she was in til 11:00pm and Jack woke up to his buddy Denny being his nurse today, Linda coming to see him as well as his other girl Sherise and his all time favorite play pal, Derrick. Jack still has the cramping but it sure doesn't seem to bother him as much with all his friends around.

So far today we still haven't been scheduled for his scopes which means they will either schedule it for tomorrow (friday) or schedule it for monday, and I will be so upset that they will make us stay here for the entire weekend. Please keep those fingers crossed that they get us in for the scope tomorrow and most of all pray that his symptoms are just that from a virus and that his gut really is starting to look good and that the transplant is helping it get better.

Thank you all again for continuing to keep us in your thoughts and prayers. God Bless