Mark your calender and set your clocks for
Monday, June 12, 2006
Mystery Diagnosis on the Discovery Health Channel
10:00 pm Eastern Standard Time
(check your local listings for time and channel)
Click this link for more information and other viewing days and times http://health.discovery.com/tvlistings/episode.jsp?episode=17&cpi=112261&gid=14341&channel=DHC
This will be our first opportunity to get out NEMO awareness through our quest for getting Jack his diagnosis. It will be only about a 15 or 20 minute documentary, but hopefully one that will get NEMO out to the public. Tell your family and friends to watch!!!!
Comments (1)
My mother called shortly after this aired and told me to contact Dr. Orange. Our son, Brendan(3 yr old), has severe food allergies, immune deficiency, and failure to thrive. His doctors haven't been able to give him a hard and fast diagnosis or prognosis yet. They said a BMT may be in the future, he is currently getting IVIG. We know that his brother is missing part of his X chromosome, which he got from me, so I contacted Dr. Orange via email. We'll see. It'd be nice to have some kind of answer.
I am so glad that Jack is doing well. Have any of Jack's allergies resolved with his BMT? How do y'all handle them? Brendan was diagnosed at 8 months with the allergies. He is allergic to peanuts, milk, eggs and beef. He can tolerate soy, which with chicken are his main sources of protein.
Thanks so much for sharing your story. You might have made the difference of a life for us.
God Bless,
Michelle Bixler
Posted by Michelle | June 13, 2006 11:30 PM
Posted on June 13, 2006 23:30