Well, it has been a while since this the last blog. Things have been very busy around here. Running here and there, going through boxes and boxes getting ready for the garage sale. The stuff is piling up - toys, games, books, furniture and other misc.stuff. You can't imagine the stuff that has been collected and stored over the years.
Anyway the real reason we're here. Monday was one of those days you wish you could restart. Jack's J-tube (feeding tube) clogged. Which means no formula, no medication, no nothing going through it. So we make the phone calls to CHOP and arrange to have it replaced. I spoke to Interventional Radiology(IR) at 1:00pm, they told us to be their before 4:00pm. So Charlotte jumped in the car and off she went. Got to Philly by 4:00 and was done and out by 5:00. Jack did not have to get knocked out for it so that was a plus. He is such a big man, they took him into IR by himself; laid him down on the table and replaced his tube. Not a sound out of him, no crying, no whining. After he was finished he got up and said "me got new huba". He came home and ran in lifting his shirt showing off his new tube saying "me got new huba". He is so proud of his new tube, it is so funny. 2:00 PM to 7:00 pm to Philly and back = a Banzai Roadtrip. Charlotte's really getting good at it.