September 2005 Archives
"JACK IN THE BOX" We are having a fundraising garage sale for Jack coming up on October 7th, 8th, and 9th. We have a bunch of stuff to sell from toys to household items to office furniture. It's all here. Come check it out and help Jack.
THE WRISTBANDS ARE IN and they are available. A really big thanks to Dr. Ashmore who sponsored them. Also a Big Thanks goes out to Jerry Corso & John Cuozzo @ Advantage Promotions for all their help and expertise. Jerry and John are also working on T-Shirts and Hats for us. We are also seeking anyone that would be interested in sponsoring them. The wristbands are available in the store on the website. They are going fast, so get one now. We are also looking for anyone interested in selling them. If you are interested in sponsorship or selling wristbands email me.
Well, it has been a while since this the last blog. Things have been very busy around here. Running here and there, going through boxes and boxes getting ready for the garage sale. The stuff is piling up - toys, games, books, furniture and other misc.stuff. You can't imagine the stuff that has been collected and stored over the years.
Anyway the real reason we're here. Monday was one of those days you wish you could restart. Jack's J-tube (feeding tube) clogged. Which means no formula, no medication, no nothing going through it. So we make the phone calls to CHOP and arrange to have it replaced. I spoke to Interventional Radiology(IR) at 1:00pm, they told us to be their before 4:00pm. So Charlotte jumped in the car and off she went. Got to Philly by 4:00 and was done and out by 5:00. Jack did not have to get knocked out for it so that was a plus. He is such a big man, they took him into IR by himself; laid him down on the table and replaced his tube. Not a sound out of him, no crying, no whining. After he was finished he got up and said "me got new huba". He came home and ran in lifting his shirt showing off his new tube saying "me got new huba". He is so proud of his new tube, it is so funny. 2:00 PM to 7:00 pm to Philly and back = a Banzai Roadtrip. Charlotte's really getting good at it.
This is Jack's Physical Therapist Trudy. Over the last 2 yrs. Trudy has been coming to our house to work with Jack. She has helped Jack overcome the setbacks caused by extended hospital stays. Trudy works with Jack to help him achieve the normal milestones of a healthy child, such walking, running, jumping, climbing and those other physical therapy (PT) type issues. Trudy came to us through Early Intervention and unfortunately when Jack turned 3 Early Intervention ended.
Trudy won't be doing PT with Jack anymore but hopefully she will still come by and see Jack. We will miss seeing her every week.
Monday afternoon Christina went on a play date at Charlene's house. Around 5:00 Tina calls to ask if she can eat over. We said sure no problem. About 45 min later the phone rings again and it is Bob, Charlene's dad he said that Christina had fallen off a swing and was crying about her arm, they were putting ice on it and she wasn't calming down. I asked Bob if he could run her home. I went and waited out front and they came down the street. I got Tina out of the car and she was still crying. I took her inside and compared arms, her left was more swollen then the right. By looking at it I knew something was wrong. I told her she had to go for an X-ray. She didn't want to, it hurt to much. I told Charlotte she needed to go to the Emergency Room (ER) for an X-ray. Christina said she wanted Charlotte to take her. So off they go, 2 1/2 hrs. later Charlotte calls telling me it was broken. Just what I had figured. Anyway the ER put a splint on it and told us she would need a cast and to see the Orthopedist tomorrow.
While Char & Tina where at the ER Charlene called to check on Tina. I had missed the call and called her back to tell her that we took her to the ER. Bob got on the phone and apologized. I told him "don't be silly accidents happen". I called Bob, Beth and Charlene back after hearing from Charlotte and told them it was broken. Again they apologized profusely and that they felt really bad. I again told them don't be sorry, it was an accident.
Bob,Beth and Charlene came to the house this evening, they brought Tina a gift and apologized again. Beth said it was her fault for sending them outside to play until dinner. They signed Tina's cast and stayed for a while and hung out with us. They are 3 very special people. They are truly great friends. P.S. Beth it's not your fault, I just hope her fall didn't ruin the turkey burgers. P.P.S.S. Thank You for the beautiful gift it was not necessary.
First and Foremost I would like to send our thoughts and prayers to the people on the Gulf Coast, who have suffered and lost from the wrath of Hurricane Katrina. I have been glued to the T.V. for the past week watching in disbelief. I can not imagine what these people are dealing with. Please Pray for them.
Now, Today was Jack's 3rd Birthday. I cannot believe it has been 3 years, because sometimes it feels like lifetime. Jack had a great day. He is a big fan of "Thomas & Friends" aka "Thomas the Tank Engine". So today was a "Thomas" birthday. Oma & Opa, Pop Pop and Charlotte, Christina & I all pitched in to buy Jack a Thomas playset with track and village and all the trimmings. Grandma gave him the electric Thomas engine with 3 or 4 cars attached and some super hero clothes. He got a Thomas movie and some other Thomas stuff from Aunt Bubbles aka (Julie) & Uncle Drew, Vincent, James, & Ronya (Veronica). Vinnie and Laura gave him a Spiderman outfit with an awesome Spiderman jacket. We went out to dinner then came home and had a cake decorated with a Thomas theme. This was Jack's 1st real cake because of all the suspected food allergies and all the other issues Jack has had. All in all Jack's 3rd was great one. It is the great feeling to see kids smile. It is the best feeling to see Jack smiling, playing and fighting with Christina.
Everybody enjoy the rest of this holiday weekend.
