N.F.E.D. - 2005 HALLOWEEN BASH
After attending 2005 N.F.E.D. Family Conference in Overland Park, Kansas and seeing that we are not the only family who are experiencing some effects Of Ectodermal Dysplasia. You know that there are other families but, until you see them up close and personal it really doesn't sink in. After speaking with Jodi Reinhardt, Dir. of Development of N.F.E.D. and hearing about the Halloween Bash which is held in New York City. Charlotte was asked if she would be interested in volunteering for the Bash this year. Not having to think about it she said "whatever I can do to help" They are also looking for more volunteers (below is the email Jodi sent Charlotte) If anyone is interested in volunteering please let Charlotte (charhagelin@comcast.net) know. The more the merrier and it sounds like fun.
Hi Charlotte,
I enjoyed meeting you at the Family Conference this past weekend. It was such a great time, wasn't it? I hope that your family enjoyed it. I wanted to follow-up with you regarding the Halloween Bash that we discussed.
This year's event is Thursday, October 27th at The Altman Building in New York City. We are looking for volunteers to
1) help recruit items for the auction, attendees for the event, or advertisers for the journal/program.
2) set up the event during the day on the 27th. We typically begin at 9 a.m. It takes us all day. Sometimes guests arrive while I’m still in my blue jeans!
3) volunteer at the actual event. This is the hardest one to get volunteers for. I would LOVE for you and your friends to volunteer for this. Those NFED families who volunteer will be worked for the entire event (5:30 - 9:30/10 p.m.) and are not charged admission. I always need people to work the silent auction which means making sure people don't steal items, pulling the paper work when the auction is closed, and handing out items once donors provide verification that they have paid for it. I will take as many volunteers as you can bring for this. Tell them to be prepared to work. It's not tough work but it is important and I need reliable worker. I'd love to have all of your help!
Obviously, we have time before the big event. Let me know what your thoughts are. Thanks so much!
Sincerely,
Jodi
Jodi Edgar Reinhardt
Director of Development
National Foundation for Ectodermal Dysplasias
Phone - 618-566-2020
Web Site - www.nfed.org
You did such a wonderful job on your first blog. I am putting things together for the raffels and actions. I wish I could make it to the benefits that these wonderful people are doing for you. You are in my thoughts and prayers every day!
Love you!!
D
Whatever it is, where ever we are, I am always here for you guys. You are part of my family.
I can't wait for Jack to be a healthy little man and him and Ronya can get married! (Well at least go to the Prom together first!)
Looking forward to celebrating Jack's 3rd Birthday on Sunday and have him eating his first birthday cake EVER!!
Love forever and always
Julie aka Aunt Bubbles